The Aword

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Global Database

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Dear All

I'd like to start a new venture, which will hopefully help improve our knowledge of arachnoiditis. I want to set up a database on cases of arachnoiditis with as many people as possible contributing from around the world.

This will be an update and extension of my 1999 Global Survey. The format will be slightly different. You can see the results of that survey Here.

The first part involves some questions which are looking at the course of the illness. This is partly in preparation for a chapter on this in Prof Aldrete's second edition of his book on arachnoiditis. (Please note any information you send me will be strictly confidential) 

The further parts will be posted in due course and will deal with more detail on the causes, symptoms, impact on life in general and then treatment (what works and what doesn't).

If anyone has any other suggested aspects we need to cover, please let me know.

If you take part, please tell me if you also did the 1999 survey.

The more people who join in, the greater will be the impact. There were 317 diagnosed people in the last survey, only 29 undiagnosed, I'd like to top that if we can.

Pass this on to anyone who you think might be interested.

Many thanks in anticipation,


New Questionnaire