The Aword

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TOPIC: Is this forum active?

Is this forum active? 5 years, 1 month ago #1180

  • di
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Hi to anyone out there!

Unfortunately, this forum looks like it's inactive.

My name's Di and I'm in Qld, Australia.
I'm 52 and married to a wonderful supportive, patient and loving man. ♥

I've only just learnt that I have Arachnoiditis from my Neurologist last week.
It was evident on my last MRI which was 12 months ago, so I'm a bit peeved it took so long to inform me.

The reason I've been given is; I haemorrhage during my L5-S1 discectomy surgery 3 years ago which became the underlying contributing factor and reason for my current condition.

I'm trying to research and talk with like minded people to get a better understanding of this condition/disease.
To say I'm confused, frustrated and also terrified would be an understatement atm.

It looks as though I'm going to have a 5 day Ketamine Infusion in January.

Anyway... I've put myself out there to see what support there is on the net and to educate myself.

Thanks for listening.
Di ♥

Re: Is this forum active? 5 years, 1 month ago #1185

  • gmak
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Hi di, Thank you for posting although you found no one @ home! Check your OLD MRI reports & see when it first said " clumped nerve roots". That is arachnoiditis. Then you will know if it happened as they said or they operated on you with AA ! Nice to meet you di. If you will come to this site I will tell you everything that I have learned from researching this for 12 to 16 hours a day since June. Thank you. I dont know this site very well but will look for you! Gmak
He sent forth His Word and healed them.
Last Edit: 5 years, 1 month ago by gmak. Reason: typos

Re: Is this forum active? 5 years, 1 month ago #1193

  • gmak
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Hey di, which place do we meet in?. I cant find you. Hope you see this! And its not private you can meet with us,too!
He sent forth His Word and healed them.
Last Edit: 5 years, 1 month ago by gmak.

Re: Is this forum active? 5 years ago #1199

  • kev
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Hi di, i'd be really keen to hear how you get n at your ketamine infusion. I read about it being very good for CRPS so hopefully it can do similar to Arach.

Kevin

Re: Is this forum active? 5 years ago #1202

  • di
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Hi Kev,

I'm not due to have my consultation until 9th January. I've been a bit freaked out about some things I've read and been told so I have heap of questions for the specialist before I give him the nod to go ahead.

I'll certainly keep this thread posted for you.

Cheers,
Di ♥
Di ♥

Re: Is this forum active? 5 years ago #1205

  • gmak
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Hi di, kev & all, wrote long post, acc pushed cancel! Di, i would really like it if you would post all about ketamine imfusion. ALL that you know & all the benefits, procedure, purpose? That would be so great for me as iive in a country where drs can go 30 years & not tell a patient!! Amd currently, all they say is spinal stim, morphine pump with NO acknowledgement that this EVEN truly exists! Family & friends that seem so concerned & pushed me all those uninformed years to find out cause & now wont watch a 50 second video. When i describe aa i see their eyes glaze over, bored out of gourd. Mom & Bf even went so far to say that i get worse after being on a forum, or after getting & learning about aa! And, this is the kicker, that b/c of " you get what you say" belief, that THEY get more physically ill after i have obtained info & share a millisecond with them, & have asked me not to talk about it!!!!!! it was easier for all of them to throw out a random "Im sorry" than to press their brain to comment or understand a concept that involves my life in every way!! It makes THEM physically sicker b/c I read about aa!! And want their interest!! Even my husb & grown children! Brother watched video as a token interest in whats wrong with me!! FRUSTRATING! Sorry for the rant. But, b/c of my physical limitations @ times lately( like i rode in car 5 hrs) family has said i dont want you to go to ( fill in blank) b/c of you will be too much trouble, we will have to leave early if you START hurting! When ive been hurting straight thru for 30 years!
He sent forth His Word and healed them.
Last Edit: 5 years ago by gmak.
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