Hi to anyone out there!
Unfortunately, this forum looks like it's inactive.
My name's Di and I'm in Qld, Australia.
I'm 52 and married to a wonderful supportive, patient and loving man. ♥
I've only just learnt that I have Arachnoiditis from my Neurologist last week.
It was evident on my last MRI which was 12 months ago, so I'm a bit peeved it took so long to inform me.
The reason I've been given is; I haemorrhage during my L5-S1 discectomy surgery 3 years ago which became the underlying contributing factor and reason for my current condition.
I'm trying to research and talk with like minded people to get a better understanding of this condition/disease.
To say I'm confused, frustrated and also terrified would be an understatement atm.
It looks as though I'm going to have a 5 day Ketamine Infusion in January.
Anyway... I've put myself out there to see what support there is on the net and to educate myself.
Thanks for listening.