Hi Ginnie
I think it is a great idea. It is what Ann,Vera and I decided to do in 2002. We were members of a national charity but we wanted, needed something local. We checked out what was available locally but of course no one had even heard of Arachnoiditis.(It took Ann about three years to be able to say it without spraying everywhere and Vera just gave up. That's why Ann came up with 'theAword')
Check out if there are any groups dealing with Chronic Pain.
When you have 5 members. you can get 'constituted' as a group (they don't all have to have a diagnosis). I can help with all that. Sorry all non UK residents. I don't know enough about your countries.
You can then tap into funding for activities on account of Long Term Medical Conditions from various pots.
Our local support group has just got funding approval for hydrotherapy swimming for the next three years. Small but so important to those members who can benefit.
Good Luck, if I can help I will.
BTW, my grandson goes back to Blackburn Royal Infirmary tomorrow and hoping for some good news. Excellant hospital, which is why we didn't transfer him to Liverpool following his accident. (Pays to google a consultant involved!!)
Good Luck
Kim