Hi Claudine
The only reliable source on the internet for me is
www.theAword.org if a search doesn't give you want you want. I will find it for you.
I had an email this week via the forum and then I get a post from this Facebook about the same thing. So I replied to Louise privately with the link. (Not DocSarah) I gave her the link on our website to the only article written other than by DocSarah that I allowed to be published. It is in Serendipity (articles I couldn't seem to place anywhere else)
www.theaword.org/index.php?option=com_co...dipity&Itemid=48
I had met Prof Daymond before and at the same time as DocSarah on a number of occasions. (not as a patient).
When they left the Arachnoiditis Trust, (very quickly followed by me) I had kept all articles I had published and asked DocSarah to include this one article on the website. She approved, although she has not had the treatment herself but as a medical professional had a great deal of respect for him. He is a rheumatologist.
I was at that time on a telephone helpline so received many responses. I had one severe adverse reaction but from a patient whose doctor had not followed the protocol. The other responses were good to maybe. I am not medically qualified, I just listened to people.
It is one of the follow up articles I want DocSarah to do for me. I have Prof Daymonds secretary email but I would prefer it if I could get them to discuss an updated response on the small scale research he did.
I cannot, in all honesty, put that pressure on her at the moment, but rest assured I will as soon as I know she well enough:kiss:
Take Care
Kim