Hi,
I am a new forum member. I believe my daughter, age 46, has a severe case of Adhesive Arachnoiditis. She had oil-based myelograms in both 1979 and 1980. She developed significant symptoms after an exercise injury last September. She is in constant back/hip/leg pain and has lost her ability to walk. She cannot shuffle more than a couple of feet as her knees slowly buckle. She also has to self-cath about 50%. I have to move her to the toilet using a wheelchair. At night, in bed, she is often in so much pain that she needs our help to rotate from her hip to her back.
I have recently been in e-mail contact with Dr. Charles Burton of "The Burton Report" fame. He advised me that
"Adhesive arachnoiditis is a definitive diagnosis made on a MRI scan by a radiologist who knows what it looks like."
How do I find a radiologist who knows what it looks like?
Does anyone have know of a radiologist in the United States in whom they have confidence that he/she knows what an MRI of Adhesive Arachnoiditis looks like?
Thanks.
gary
