Hi Gmak and Helen, its been some time since I last checked in, life has been so busy with my elder sons immune illness attacking his muscles so he and I live together. It was all too hard for my husband of 43 years so its just me and my son. I think our struggle surviving AA is made so much harder because those around us don't see the struggle every day all day, years. They think we should improve or we are not trying to find solutions they get tired of us not being able to go out with them for outings and so we are seen as isolating ourselves. I am 63 now and finding I am getting worse, the intensity of back and leg spasms that I have to fight to walk get so bad I battle to get to my bed to lay flat. I do my home chores and its so painful to hand our washing, I have to go lay over the bonnet of my car. To do shopping for food, I need to get a small trolley to make it in to the store and these days I can only cope with the food shop because the agony is not worth it.I am at the stage of needing a walker but our money it tight with us both on pensions. Our government did a roundtable discussion on AA they compiled a small soft cover book all about living with AA and what they are planning to do to help sufferers !! amazing !!! check it out if you can google roundtable discussion living with the pain of adhesive arachnoiditis.gov.au
I get told I should be not isolating but go to our church, which call ecclesia. After my week its not a possibility to dress up and go to our ecclesia. My faith is vital to me and helps me so much, at least I can take part and listen to everything via a phone link service and my hands free phone. honestly without faith and knowing these is so much more to life than this life....give me strength.
I am so glad your doctor finally fessed up, but I can see how he was thinking, however we need honesty. I hope Helens tennis elbow op will help, no one needs more pain or problems. I live in Australia close to Lake Macquarie. It is a perfect sunny day today... Saturday. Our weather is much warmer than it should be in our winter it is 20c it should be 16c.......climate warming I guess...I will sign off for now...sending my best thoughts to you guys..xox