Hi Kim
Now I know why you know so much. When will some doctors realise that if you give people a diagnosis it only empowers them to help themselves. I am sorry you have had to suffer so much. If they knew what your problem was, why did they continue with more invasive treatments that would only make the problem worse!
It's my partner that suffers the pain and of course there has not been a diagnosis, in fact they just go tight lipped and don't say anything. He is on income support and is desperately worried that because no-one has said or even idicated what it is and most doctors look at him a bit strange when he starts saying things like 'it feels as though I am walking on broken glass', the burning in my legs is killing me etc, which I think, is what I put in the google search and found arachnoditis, that they are going to try to force him back into work. I really feel that I have to do something to help him as he is not a 'wimp' and just lately the pain has been getting much worse..I have found him sobbing his socks off on a few occassions due to the pain. He is also terrified that they will start doing more surgical work if he moans to them too much.
I feel that if he could get a dianosis which gave a name to whatever it is and some proper pain relief, life would be so much better for him.
Take care and bless you
Jan