The Aword

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Introduction
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TOPIC: Introduction

Re: Introduction 7 years, 1 month ago #975

  • Kim
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Hi Barb
Struggling a bit on size of print.
I have a diagnosis of AA from a CT scan (more reliable) in 1988 from a radiologist!
Another story there!
Bye for now
Kim
NEMESIS - goddess of indignation against and retribution for, evil deeds. Apparently regarded as an avenging or punishing divinity - I wish.

Re: Introduction 7 years, 1 month ago #976

  • ellijaygal
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I think most people who have AA have a long story to tell because it is generally YEARS before a physician will finally admit it. In my case, my neurosurgeon felt no fear of admitting I had it and even showed me the MRI features that proved it because I had the spina bifida when I was born and various other things that could have caused it rather than any fellow colleagues. Even though that was the case it still took years for them to stop labeling me as "major depressive disorder" to oops you have a tethered spinal cord and it's pulling your brain out of your head and splitting your spinal cord-we need to do emergency surgery. Grrrrrrr It took them about 5 years to even do a darn MRI!!!

Juva I went through hell trying to figure out what was wrong with me. I gave up for a long time and it got to where I cried when I tried to sleep because my legs jerked and twitched and felt like electricity running through them so bad I never slept. So I tried again to figure out what was wrong. Finally I got a P.A. that would listen to me since a doctor would not. I wasn't happy to have the condition/disease, but I wanted to go stand on a mountain and scream to everyone that thought I was a hypochondriac and depressed person "I TOLD YOU I WAS SICK!!!!!!!!!!!" It really is horrible when you are happy to find out you have a progressive disease because you have been treated like a nutjob for so many years.

Barb
"When it is dark enough you can see the stars." Charles Beard

Re: Introduction 7 years, 1 month ago #977

  • Juva
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Hi Barb,
It is extremely aggravating. I don't understand how some doctors sleep at night. I didn't even take an oath, but if I know that I can help somebody I do everything in my power.
What is a PA? I'm very nervous about my appointment tomorrow, because with each ppointment I have such high hopes of finally getting answers & some sort of relief. I don't expect to be pain free, just to have the pain tolerable & to be able to have a somewhat normal sleep pattern.
If I don't get satisfactory answers tomorrow, I'm planning to make an appointment with Dr. Aldrete & just spend the money for the trip & the $1000.00 fee. I'm not getting anywhere otherwise.
I know how you feel about shouting it from a mountain top. My PCP retired & I had to see a new Dr. he flat out refused to refill the light pain meds that had been prescribed. I'm tempted to go & show him my diagnosis if I ever get one.
Politics & the buddy system have no place in medicine & I'm hoping that someday things will change.
((gentle hug))
Juva

Re: Introduction 7 years, 1 month ago #978

  • ellijaygal
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I typed something and then hit a wrong button I think. haha

Anyway, I said a PA is a physician's assistant. I got further with a PA than a doctor!!

It is horrible when you know something is wrong and hurt all the time and nobody listens to you or takes you seriously. Don't be nervous about your appointment. Whatever is wrong is wrong, and if they don't give you answers eventually you WILL get some answers. Just don't give up.

Good luck and I hope things work out well tomorrow and you get some answers and some relief soon!
"When it is dark enough you can see the stars." Charles Beard

Re: Introduction 7 years, 1 month ago #979

  • rita
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Thought you might like to know that I met a young sympathetic lady doctor recently when I spent a couple of days in hospital. She was waiting for the specialist to come back and started chatting to me. She stated that she had read a lot about this Arach condition and said "It is a horrible and very nasty condition". Unfortunately the Doc arrived and our conversation came to an end.

Hopefully there may be a few more like her coming through the ranks. After 19 years it's the first time I have heard a doctor comment on how bad it is. I felt like shouting "EUREKA".

Best wishes to you all

Rita
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