Dear Becky,
firstly, I must apologise for not responding sooner to your post. I find the format of the forum doesn't highlight new posts very well and I overlooked your post.
Looking at your history, the combination of spinal surgery and then epidurals with dural puncture and subsequent blood patch were probably the causative incidents in your case. Pinpointing one of the events is difficult and in any event perhaps not overly helpful.
The main thing is to get your symptoms manageable. That can take time and usually requires a combination of treatments: pharmacological (medicines) and other such as TENS machine, massage, physio, hydrotherapy, acupuncture, cognitive behavioural therapy, using techniques such as relaxation and distraction.
You are at a difficult stage just now I expect you are feeling angry and confused about the diagnosis. That's entirely understandable. By all means use this site to learn more about the condition but I would urge you not to hold onto your anger because that can exacerbate your pain and distress and make life thoroughly miserable. Don't get me wrong, I'm not minimising how you feel, but anger is (as the Chinese saying goes) like a hot coal you pick up to throw at someone...who gets hurt first???
All the best,
Take care,
DocSarah