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Tethered spinal cord?
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TOPIC: Tethered spinal cord?

Re:Tethered spinal cord? The Doc replies 16 years, 6 months ago #659

  • kev
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Ji Kim, thanks for your help in contacting the Doc for me, could you pass on my reply to her if you get the chance?

Hi Doc, thanks for the reply, you've described my symptoms to a T. I get the trapped wind, urge to empty bladder/bowels, neck pain, upper body pain, band-like feeling around the chest, mid and lower back pain and the abdominal pain is widespread too but is further complicated by abdominal adhesions from 2 major ops i had 25 years ago due to a motorcycle accident. A specialist has even offered to operate on me to remove the abdominal adhesions but offered no better than a 50/50 success rate so i declined. I'm really hoping this new treatment discussed recently about the endoscopic removal of arachnoiditis turns out to be successful and becomes available here, are you optomistic on this procedure?

Re:Tethered spinal cord? The Doc replies 16 years, 6 months ago #660

  • Kim
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Hi Kev
Reply is:

It's early days to say whether the endoscopic resection of the scar tissue will work in the medium to long term; the chances are that the adhesions will recur, much as they tend to do with abdominal adhesions. I guess the success rate is probably less than the 50:50 you were quoted for the abdominal problems.

Sorry I can't be more optomistic. I am in contact with a German doc who is doing the endoscopic procedure so will be sure to keep an eye on his results. Short term they do look quite promising but let's wait and see before we get too carried away.

Regards,

DocSarah
NEMESIS - goddess of indignation against and retribution for, evil deeds. Apparently regarded as an avenging or punishing divinity - I wish.

Re:Tethered spinal cord? The Doc replies 16 years, 5 months ago #661

  • kev
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We can but hope eh?

Interesting stuff that about the 'Flat back syndrome', i'm beginning to wonder now if it is the AA, the abdominal adhesions or the FBS that is causing me all the abdominal symptoms now. Also i had attributed all the upper back pain/neck spasms to the AA but possibly this could be the result of the FBS. My surgeon just pawned me off to a pain clinic as soon as he saw the AA claiming he did not know enough about it and he never went into detail about the FBS.

Anyway, thanks again Doc.
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