Dear Dr. Sarah, Thank you for your reply. Originally my neuro thought there was the link as well. The LP showed elevated leucocytes (not enough for an infection) and protein. Got a high sed rate and so forth.
The problem is that I'm reacting badly to the steroids, adjusting the IV dose has been challenging going down in dose and now having to stay in after treatment, ended up in ER twice with atrial fib twice 6 hours post administration. Had to be defib. once.
I think you may have my email address from the survey, wanted to discuss another possible reason but am hesitant to do so publically. I'm the chemical meningitis lady, maybe Kim could give it to you if you don't have it, it's a yahoo account I'm at wits end.
I'm very close to deciding on the meningeal biopsy as risky as it may seem as this treatment is risky, much friendhip, Aly