Dear Ann
Thanks for your message. I am finding things very hard to cope with - everyday my body is going into uncontrolable spasms, pulling, wrenching and spearing my body. I feel totally out of control and I don't think I can take much more. My GP cannot believe that all my symptoms are caused by the arachnoiditis, she doesn't think it can travel from the base of your spine up to your neck and face and affect arms, chest wall etc. I know she's wrong because she can't feel what I feel and its so frustrating and demoralising. She has referred me to a Neurologist in January, but I don't have any confidence in the medical profession any more.....!
Thanks for your support - sufferers need this lifeline. Helen